From: "Dr. D. Kossove" <doctordee@telkomsa.net>
To: "Stu Jolley" <Ss0214@aol.com>
Subject: Update - Debbie NEED INFO
Date: Monday, December 01, 2003 10:47 AM

Date:    Sat, 30 Aug 2003 22:12:36 EDT
From:    Stu Jolley <Ss0214@AOL.COM>
Subject: Update - Debbie NEED INFO

Since my last post indicating that Debbie came through the surgery to
her
remaining lung very well, she ended up in ICU with a lung full of
fluid that
appears to be a result of pneumonitis.  She was on a ventilator and
high dose
steroids for 6 days.  Her lung cleared up and she came home on Aug 15.
She went
from walking 360 yards the next Monday to over 3 miles five day later.
Of
course she used oxygen while exercising and sleeping, but things were
going well.
Last Friday she had a scan and post op followup with her surgeon.  To
everyone's surprise, there is a new nodule in the lower left
lobe....NED didn't stay
very long.  Current surgeon believes that too much lung would have to
be
removed if he went after it surgically.  So I need some current info
please:

1.  Anyone who can recommend a DR that is experienced in lung RFA.
2.  What are names/success of drugs currently being used for estrogen
suppression?
3.  What other drugs/treatments to slow growth such as antiangiogensis
or
even chemo   success at stabilization?
4.  Any other suggestions are welcome.

Thanks for your help,

Stu Jolley (Utah) Debbie's Father
6/01 Dx uterine fibroid (surprise) resected
8/01 Scan clear
2/02 Met right lung, resected VATS 4/02
6/13/02 Scan 5 mets to right lung, 2 to left lung, 6/24/02 pelvic and
bone
scan clear
7/8-8/19/02 Doxil 2x, No effect tumors still growing
8/30/02 Started Temodar 100mg 2x day, 5 days on 23 off
9/24/02 Temodar 150mg/m**2 per day 7 days on 7 days off
10/21/02 CT shows some shrinkage..continue Temodar
12/30/02 Temodar no longer working, new mets and growth
1/16/03 Inoperable, start Gemzar/Taxotere
2/10/03 Radiate bleeding tumor in right lung
2/20/03 CT shows good shrinkage, continue Gem/Tax
4/5/03 Still good shrinkage
6/17/03 Thoracotomy/Pneumonectomy right lung, collapsed.
7/30/03 Thoracotomy, resection of remaining tumors in left lung, NED?



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